Thursday, 15 May 2008

15May08 - Back to Blog

For one reason or another it has been a while since the last blog. I am happy to say that there has been no reoccurrence of the incident at Joshua's school. It seems that the school was able to deal with the situation satisfactorily. Hopefully disability awareness within the school has improved and some good will come out of it.Lucy has been a little star over the last couple of weeks. She has been very content and has been eating extremely well. We think she must be having a growth spurt! It has been a pleasure knowing that feeding is going to be an easy job before you even start. It takes so much of the pressure off the daily regime and there is a sense of satisfaction from seeing empty bowls of food. We have noticed over the last few weeks maybe months that Lucy is mouthing when she knows it is meal time. We started to work on this and now almost invariably if you ask her if she is thirsty or wants some juice, she will start mouthing. This is a tremendous breakthrough and we are really excited about it. We are also starting to see that there are slight variations which may mean she is trying to tell us different things. So we are working on thirsty and hungry at the moment to try and establish a different command for each. If Lucy can start to tell us what she wants it could change her life completely. It is early days so we remain realistic but at the same time hopeful that in some small way we can improve Lucy's quality of life.Lucy has been enjoying plenty of days out over the last couple of weeks. We have been saving our direct payment hours and Helen has taken Lucy out for the last two Saturdays. She has taken Lucy all over. These pictures were at Golden Acre Park in Leeds. Lucy came home smelling very nice because she and Helen had been round the shops trying out perfume.The weather has helped a lot because it has been nice to be outside without the fear of Lucy getting too cold and wet. Lucy and I went for a walk in the park last Saturday morning and it was so nice I didn't want to go home. Lucy loves sitting in her chair looking up at the trees and just watching the world go by. I am sure I would get tired before Lucy became bored in her chair.There has definitely been a noticeable change in Lucy. There is no doubt she has grown, in fact I was amazed recently when I was shown a wall chart at her nursery showing just how tall she is. I just don't think of her that way because she is always sitting or lying. She is also generally more content and as I said before her feeding is simply excellent at the moment. I just hope that this good spell lasts for as long as possible. This Summer just might be a good one!


Anonymous said...

looking forward to seeing Lucy in Scotland - I am sure (looking at your pictures on the blog ) she has grown lots since i last saw her - it seems ages since I did see you all last so will be good to catch up ! Aubtie Mary xx

fairenuff said...

Wow, what a fantastic update.

Anonymous said...

Such a fab catch up blog! So lovely to see all the pictures, and am so glad everything got sorted with Joshua's school, such a shame that despite all the break throughs so many people are still so ignorant. I really hope you all have a really good, healthy happy week in scotland, really wish I was coming but i look forward to seeing all the pics. Loads of love to you all
cousin Emma xXx